Saturday, October 6, 2012
Friday, October 5, 2012
Complaint Friday and Smiles too
“God, help me to live for today and to enjoy it to its fullest"
I have an auto-immune disease that nobody really understands....well thats how I feel. This am in my email from Health Central I have literature regarding assistance for biologic medicines. Below is how I feel about the email...
I have a comment and not to be negative, but I once had insurance and my co-payment seemed high, then I lost my insurance and could for a short period of time receive assistance for biologic's. Seems strange if I worked and carried insurance I paid more and if I did't work and couldn't afford I get assistance. Biologic's haven't really been that fantastic for me....yet everyone. meaning doc's and research seem to think its the best. These biologics, everyone needs assistance unless you have a six figure income...one treatment is about $450.00 per dose. Now isn't that ridiculious. How could anyone afford to pay that out of pocket expense. Mind you that was one dose per month. My cost 60.00 dollars multiply by 3 because it takes at least three months for the drug to work 180.00 dollars!.Then you don't even know if it is going to work. My disease put me out of work into disabilty...Which with all the red bearuatic bullshit, I still haven't received any payment. Now thats another story I will address in another paragraph. Its been 2 years since I have been off work. Would social security really be able to cover these drugs too? It is sad that we have such a high revenue for biololgics and assistance programs can give the med's away. My apologies for the compliant. But something has to give with the pharmaceticals its gotten out of hand and also social security. But it is really hard to understand our insurance paying the high costs and assistance programs allowing people to receive free meds. I have been on both sides of the ball and I am still sick without a medicine that works. Right now I have taken three asprin, one cymblta, and a pain pill that is a high dose of acetamepion for my pain. I have arthritic gloves on my hands and arthritic socks on my feet, wear a generic form of crocs called dogs. I can't hardly lift my right arm due to the pain, nor lift my lap top without horrid pain. My left foreman I can't move certain ways because of extreme shooting pain cannot shake a towel out to fold, nor rugs to clean. Thats just my arms ok I havent gotten to the knee's or feet yet not to speak of my hands. I visited the ER in May because I couldn't walk do to the left side of my hip and leg being non functional and I couldn't stand the pain after three days. Now dumb me I have another bill I cannot afford. Yes 1700.00 for laying on the gurnie and some nice gentleman informing me that nothing shows on the xray but then xrays dont show rheumotiod arthritis in its active state. Well blow me out of the water moses heck then why bother just give me some morphine and lets get my happy butt home. matter of fact give me a double dose before i punch someone. Pain so extreme I couldn't even function mentally. So this xray thing goes into another story of why i cant receive disability yes. The government yes our blessed government required xrays of my left hand and right shoulder six months prior to this RA flare and the social security doc made the decision from those xrays that i wasnt disabled. Yeah, yet I am informed when I can't walk that xrays dont show RA flares...Is that just not amazing. I seriously have to laugh now years of RA inflammation will eventually move the joints and deform them. But current inflammation and joint pain will not show up on an xray. Yes, still without a cure and a income. So perhaps become a part of a study. I am the study! Nothing is working still. Morphine will make pain go away for a while, steriods may work may not work, Cancer treatment drugs in low doses warm and heat me internally making the joint feel relief from pain yet not swelling. Biologics cause all sorts of side effects and if you catch a cold or flu..or( maybe even blood cancer or lymph cancer to name a few). You stop taking because your immune system takes about four times as long to heal. So I have voiced my opinon with many misspelled words and with english that could make my college teacher gringe...but please don't even start telling me about assistance programs....
I have an auto-immune disease that nobody really understands....well thats how I feel. This am in my email from Health Central I have literature regarding assistance for biologic medicines. Below is how I feel about the email...
I have a comment and not to be negative, but I once had insurance and my co-payment seemed high, then I lost my insurance and could for a short period of time receive assistance for biologic's. Seems strange if I worked and carried insurance I paid more and if I did't work and couldn't afford I get assistance. Biologic's haven't really been that fantastic for me....yet everyone. meaning doc's and research seem to think its the best. These biologics, everyone needs assistance unless you have a six figure income...one treatment is about $450.00 per dose. Now isn't that ridiculious. How could anyone afford to pay that out of pocket expense. Mind you that was one dose per month. My cost 60.00 dollars multiply by 3 because it takes at least three months for the drug to work 180.00 dollars!.Then you don't even know if it is going to work. My disease put me out of work into disabilty...Which with all the red bearuatic bullshit, I still haven't received any payment. Now thats another story I will address in another paragraph. Its been 2 years since I have been off work. Would social security really be able to cover these drugs too? It is sad that we have such a high revenue for biololgics and assistance programs can give the med's away. My apologies for the compliant. But something has to give with the pharmaceticals its gotten out of hand and also social security. But it is really hard to understand our insurance paying the high costs and assistance programs allowing people to receive free meds. I have been on both sides of the ball and I am still sick without a medicine that works. Right now I have taken three asprin, one cymblta, and a pain pill that is a high dose of acetamepion for my pain. I have arthritic gloves on my hands and arthritic socks on my feet, wear a generic form of crocs called dogs. I can't hardly lift my right arm due to the pain, nor lift my lap top without horrid pain. My left foreman I can't move certain ways because of extreme shooting pain cannot shake a towel out to fold, nor rugs to clean. Thats just my arms ok I havent gotten to the knee's or feet yet not to speak of my hands. I visited the ER in May because I couldn't walk do to the left side of my hip and leg being non functional and I couldn't stand the pain after three days. Now dumb me I have another bill I cannot afford. Yes 1700.00 for laying on the gurnie and some nice gentleman informing me that nothing shows on the xray but then xrays dont show rheumotiod arthritis in its active state. Well blow me out of the water moses heck then why bother just give me some morphine and lets get my happy butt home. matter of fact give me a double dose before i punch someone. Pain so extreme I couldn't even function mentally. So this xray thing goes into another story of why i cant receive disability yes. The government yes our blessed government required xrays of my left hand and right shoulder six months prior to this RA flare and the social security doc made the decision from those xrays that i wasnt disabled. Yeah, yet I am informed when I can't walk that xrays dont show RA flares...Is that just not amazing. I seriously have to laugh now years of RA inflammation will eventually move the joints and deform them. But current inflammation and joint pain will not show up on an xray. Yes, still without a cure and a income. So perhaps become a part of a study. I am the study! Nothing is working still. Morphine will make pain go away for a while, steriods may work may not work, Cancer treatment drugs in low doses warm and heat me internally making the joint feel relief from pain yet not swelling. Biologics cause all sorts of side effects and if you catch a cold or flu..or( maybe even blood cancer or lymph cancer to name a few). You stop taking because your immune system takes about four times as long to heal. So I have voiced my opinon with many misspelled words and with english that could make my college teacher gringe...but please don't even start telling me about assistance programs....
Thursday, October 4, 2012
Tuesday, October 2, 2012
Cool Air
Oh my what a day today. Woke late yet my darlin is on nights so go figure I would wake up late. Like it really matters but needless to say he came home and made me coffee. I hurt so badly today just some days are terrible. Hands, fingers, wrists, forearms, elbows, and shoulders, neck and my feet toes, ankles, and shins just hurt hurt hurt. I hurt almost more when I wake up than when I go to bed. I just don't know about this pain anymore, have faith, that God will heal me that is all I have ...must pray and continue to have faith.
I moved my plants indoors today as the cool air has arrived. They look beautiful in our cozy living room. I did trim the palm which doesn't look that healthy and is in the spare bedroom and the bannana tree it needed a trim. So everyone (plants) are bedded in for the cool fall nights. Left my outdoor potted plants on the patio. We picked the last of the cherry tomatos this evening before honey went to work. Well I think that is the last of them unless we get rain soon, as I have stopped watering.
Closing the blog early as I need to work on my lesson for church tomorrow as I am speaker. Good night
I moved my plants indoors today as the cool air has arrived. They look beautiful in our cozy living room. I did trim the palm which doesn't look that healthy and is in the spare bedroom and the bannana tree it needed a trim. So everyone (plants) are bedded in for the cool fall nights. Left my outdoor potted plants on the patio. We picked the last of the cherry tomatos this evening before honey went to work. Well I think that is the last of them unless we get rain soon, as I have stopped watering.
Closing the blog early as I need to work on my lesson for church tomorrow as I am speaker. Good night
Monday, October 1, 2012
Missed September
Oops I missed thirty days of sharing with you ...oh my. Now what in the world will we all do without the in's and outs of September days.
I did spend ten days on our property in North Cove on the coast. Absoultely lovely. Completely a different world lies just a couple hours northwest of home. Meet some lovely people and enjoyed painting sand dollars, beach combing, and 30 miles of Junk. Which is yard sales, garage sales, junk sales from Tokeland to Westport.
Picked many a tomato during the month. To date have picked approximatley 40 plus lbs. Yes, that is alot of salsa for my honey.
So now the Indian summer is in full bloom. Chilly mornings with the woodstove heating our home and warm sunny afternoons filled with magnificent blue skys, with a cotton cloud scattered here and there, with the brillance of trees colors lighting my eyes with beautiful colors. My favorites are the yellows, and reds.
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| Evening at our little piece of heaven |
I did spend ten days on our property in North Cove on the coast. Absoultely lovely. Completely a different world lies just a couple hours northwest of home. Meet some lovely people and enjoyed painting sand dollars, beach combing, and 30 miles of Junk. Which is yard sales, garage sales, junk sales from Tokeland to Westport.
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| We tent camped one Sept weekend at the Ocean |
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| This is us...just being happy! |
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| Beach Sand feels so lovely to rest on... |
Picked many a tomato during the month. To date have picked approximatley 40 plus lbs. Yes, that is alot of salsa for my honey.
So now the Indian summer is in full bloom. Chilly mornings with the woodstove heating our home and warm sunny afternoons filled with magnificent blue skys, with a cotton cloud scattered here and there, with the brillance of trees colors lighting my eyes with beautiful colors. My favorites are the yellows, and reds.
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| Bambi (she snuck up on me) |
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